Thank you all for the outpouring of support, well wishes, love and prayers as we take the next step to get this cancer out of me. I talked to the thoractic surgeon at Mayo on Friday and it sounds like they will open me up at my sternum to get the best look at the remaining tumor. The goal is to remove all of it by cutting my tracheal tract and putting it back together. They will have a big team of doctors there to make sure they can handle any surprises and will be able to tell right away if they were able to get it all. If they can’t, I will be given the time I need to heal up and then we will proceed with radiation. This type of tumor responds well to radiation (and not well to chemo).
I feel confident in the plan, nervous, and ready to get it behind me. I’m expecting the surgery to be scheduled in June sometime, but we haven’t made those plans yet.
We have received such an outpouring of love from people far and wide and we feel your prayers and thoughts lifting us up and we are so grateful.
How to be grateful
When my girls walk out the door to play outside, and the sun is shining, and the wind is calm, as they run toward the playground or up the road to the big rocks, they say, “It’s a beautiful day!” Or, “It’s a perfect day for a walk,” or “It’s a good day to ride our bikes.”
And there are plenty of things that I say and do that I don’t want my kids to repeat (because I am a mother, but I’m far from perfect,) but I beam when I hear them have this sort of gratitude for a sunny day.
Because they’re so young, it gives me a bit of hope that the declaration and recognition of the good and beautiful things that they see and feel might become a sort of instinct that will serve them well when life is less than fair, less than perfect or unexpected in the worst ways.
Since the removal of the tumor that was blocking my tracheal tract this month, and the unexpected diagnosis that it is “cancerous,” I’ve been thinking about what has notoriously pushed me through the difficult times in the past. And I’ve been thinking about gratitude and how it serves me.
But first, I want to share that I’ve been having a hard time saying that I have cancer because I don’t feel like the amount of suffering I am going to endure here warrants that loaded and scary word. Because I’ve seen cancer take its difficult toll on the people I know and love and I’ve seen sickness ravage their bodies and take the light from their eyes.
I don’t know this for certain, but from what I understand, my life with this diagnosis will be short-lived. And because of that, something in me wants to save that word for the warriors who’ve had to fight harder. And the ones that we lost to it.
I realize now the “it could be worse” mantra is one I go to when I’m staring down a fear or suffering with grief or worry. I would say it during our infertility struggle and pregnancy losses, and I would say it when my dad was sick and dying in the hospital bed. He survived. We all survived it. It could be worse. We are the lucky ones.
To recognize others’ suffering beyond our own, I think, is a useful tool. But then, sometimes, so is walking to the top of a hill and crying out “Why?!” In my life, I’ve done both.
But for now all I can think is that I’m thankful to breathe better and thankful for a diagnosis and for good doctors and a supportive community and that it’s a beautiful day to watch my girls drink from the water hose and tear off their clothes to run naked in the sprinkler.
Thankful that, because the stars aligned just right to keep me safe, I can be here for that.
And I’m thankful that all through my childhood, the people who surrounded me pointed out their blessings as they saw them so that I could see them, too.
Even if it was as simple as melting snow on the hilltops, a ripe tomato from the garden, the back of a good horse, enough Juneberries to make a pie or just the sunshine on our shoulders on a perfect day to ride our bikes.